UK MS Register

30/05/2026

This World MS Day, we’re recognising the power of every story shared. The theme reminds us that behind every diagnosis is a unique experience that can help drive better understanding, research, and care.

By sharing data and lived experiences through the UK MS Register, people with MS are helping researchers uncover new insights and shape the future of treatment and support. Every contribution matters. 💙

12/05/2026

It's International Nurse's Day! 👩‍⚕️ 👨‍⚕️ 🏆 🏆

Today we acknowledge and celebrate the work of our amazing nursing teams. Read our latest blog to discover more about how the UK MS Register works with nurses to get more people with MS involved in research:

To mark International Nurse’s Day this year we wanted to shine a spotlight on the amazing work of the MS nurses and NHS research teams we work with. Many of you will have joined the UK MS Register online and we are so grateful to all of you for regularly logging in and completing your questionnair...

07/05/2026

This week Dr Rod Middleton and Dr Richard Nicholas travelled to Birmingham for the Association of British Neurologists (ABN) Annual Meeting 2026.

This has been a great opportunity to once again showcase the work of the UK MS Register. Here are Rod and Richard with just one of the many posters we had accepted this year.

05/05/2026

Does your menstrual cycle affect your MS symptoms?

Researchers at Northumbria University are recruiting adults with relapsing-remitting MS (aged 18-40) for a funded lab-based study investigating how hormonal fluctuations across the menstrual cycle influence brain-to-muscle communication and symptom experience. You may be eligible if you are:

☑️18-40 with a confirmed diagnosis of relapsing-remitting MS
☑️Naturally menstruating, using hormonal contraception, or male
☑️EDSS score of 5.5 or less

This study is funded by the MS Society UK and supported by MS Together. To take part, visit https://ms-menstrualcycle.co.uk/newcastle-lab-study/

28/04/2026

Our colleague Rory at the MS Tissue Bank ran the London Marathon last weekend....dressed as a brain! 🧠

Rory has raised an incredible amount of money for the MS Society UK and there is still time to donate via the JustGiving page 👇

Help Rory Turkmen Smith raise money to support Multiple Sclerosis Society

24/04/2026

We're wrapping up with some more fantastic feedback from our participants.

There's never been a better time to join the UK MS Register and start contributing your experiences to research.

Find out more: ukmsregister.org/Account/Register

22/04/2026

It's and we are marking the occasion with a new blog now available on our website.

This time we hear from Register participant Rachael on how taking up fitness and getting involved in MS research has helped her regain a sense of control following diagnosis.

Read Rachael's story here:

When Rachael was diagnosed with MS in May 2022, the news felt overwhelming and at first, she chose not to tell anyone. Processing the diagnosis privately, she searched online for information and stories from others living with MS. But instead of reassurance, she often struggled to find positive or h...

20/04/2026

This we celebrate the power of patient informed research — and the people behind it.

The work of the UK MS Register couldn't happen without our participants sharing their experiences, and helping shape our understanding of multiple sclerosis.

If you’re living with MS, this could be your moment to make a difference. Take this opportunity to explore how you can get involved and be part of something bigger: ukmsregister.org

17/04/2026

Some of the Register team are travelling to Manchester this weekend to be a part of this MS Information Day 🤩

Thank you Greater Manchester South West MS Society for inviting us along - it looks like it's going to be a great event! 🧡

SALFORD, GREATER MANCHESTER – The MS Society is inviting the local community to a multiple sclerosis (MS) Information Day held at the Copthorne Hotel in Salford Quays on Saturday, 18 April 2026. The event will feature special guest and MS Society Ambassador Kerry Riches who made history in 2023 as...

01/04/2026

Good wishes for Spring from all of us at the UK MS Register 🐣🌷

Our offices will be closing today, 1st April at 4pm, and reopening at 9am on Wednesday 8th April.

If you contact us during this time we may be a little slower than usual in responding, but will get back to you as soon as we can 🙏