NKH Notre Dame

03/23/2025

I updated today because my entire feed is ads. After I did this, I see everyone again. I’m not sure how it works, but it did!
To regain friends in your news feed and get rid of ads: hold your finger anywhere in this post and click ′copy’. Go to your page where it says ‘What's on your mind?’. Tap your finger anywhere in the blank field and click paste. This upgrades the system somehow.

It's sad we have to keep doing this to kill the ads and see our friends.
The Ads are getting ridiculous!
I do this every time I see this.

07/10/2021

NKH Cookout sponsored by the THIGPEN FAMILY
Saturday, August 14th from 5-8pm
Mansfield, OH
For more information, please contact Ed Thigpen
https://www.facebook.com/origin.outdoors
There are 5 cottages and some 2 bed bungalows at the Light and LIfe Christian Campground (State Route 39, Mansfield) if you are interested in staying overnight . Please contact Ed at 419-612-5650

04/26/2021

NKH AWARENESS DAY May 2, 2021
This week is filled with wonderful ways to learn , share and support NKH patients and their families. Enter a raffle, listen to families sharing their experiences, support families by joining them in a NKH Walkathon. Check out the details here:
https://www.facebook.com/NKHawareness
To enter the raffle for amazing gifts please visit https://www.facebook.com/NKHRaffles
Join in the effort to raise funds for NKH Research!
https://www.facebook.com/donate/212350626987330/

04/06/2021

Register Today for the NKH Awareness Day Zoom Walk-A-Thon and support research of NKH

NKH AWARENESS DAY
Join Us Sunday May 2, 2021
11:00 am EST
REGISTER HERE: https://nkhawarenessday.zoomwalkathon.com/?fbclid=IwAR109UgUmZZlOq3_GLEHwTBh516ceivm-NVsM1m9L7EiKVcsWugQpEkrbVs

04/04/2021

Join us for our 13th Annual Rare Disease Conference Advancing Research, Therapy and Patient Advocacy. This will be a seminar series every Monday from April 5th until May 3rd from 2:20-5:20pm. Registration is required but there is no charge. See https://crnd.nd.edu/ to sign up Thank you.
To register please use this link: https://notredame.zoom.us/webinar/register/WN_NZYyybc3SJO5alNMvPXSDw

https://notredame.zoom.us/webinar/register/WN_NZYyybc3SJO5alNMvPXSDw

11/02/2020

Spread the word by sharing the GoFundMe link (https://www.gofundme.com/f/NKHremembranceday2020) with your colleagues and friends (via email, text, Facebook, Instagram, Snapchat, WhatApp and more) so that we can expand our reach.

10/27/2020

Happy Notre Dame Day!

Just wanted to pass along a friendly reminder that if you haven't donated yet, now is the time. The hourly challenge for groups within the Centers and Institutes category begins in just 1 hour! The cause that receives the most gifts during the 60-minute window of 12-1pm ET ( today October 2) will earn an additional $500!

Be sure to send out your link: https://notredameday.nd.edu/organizations/boler-parseghian-center-for-rare-and-neglected-diseases

Thank you for your support!

I’m ready to support Boler-Parseghian Center for Rare and Neglected Diseases on October 26, 2020 during Notre Dame Day 2020. Learn more about Boler-Parseghian Center for Rare and Neglected Diseases and all the other areas participating in .

10/18/2020

ND Day 2020 DONATION WEBSITE IS NOW LIVE for your donations!
GOAL: # OF DONORS
Those units with the most individual donors will receive additional funds: First Place: $5,000; Second Place: $4,500; Third Place: $4,000.
-
The donor count is based on the # of unique individuals who make at least one gift to Boler-Parseghian. If your family gives $100 as a single donation, thank you very much! But to maximize competing for prizes, please consider approaching 10 family members/friends (all that’s needed is a unique email address) to help by each donating $10. Give as much as possible and alert all your family & friends!

I’m ready to support Boler-Parseghian Center for Rare and Neglected Diseases on October 26, 2020 during Notre Dame Day 2020. Learn more about Boler-Parseghian Center for Rare and Neglected Diseases and all the other areas participating in .

10/15/2020

Here are ways we hope you will participate:

Tune in for the live broadcast from campus from 6:42PM ET-Midnight on 10/26 and 10/27

CLICK below for early access to give to Boler-Parseghian Center for Rare & Neglected Diseases

Spread the word and encourage others to get involved

Mark your calendars, grab your favorite Fighting Irish gear, and get ready to celebrate with us!

Go Irish!

I’m ready to support Boler-Parseghian Center for Rare and Neglected Diseases on October 26, 2020 during Notre Dame Day 2020. Learn more about Boler-Parseghian Center for Rare and Neglected Diseases and all the other areas participating in .